On this page, you will find links to Covid-19 and Long Covid patient organizations, as well as other sources of information that our respondents have found useful to them in their journey to recovery. If you have any questions about these links or would like to suggest any additions, please contact [email protected].
Covid-19 and Long Covid Patient Organizations
- Body Politic: A global network of Covid-19 patients and chronic illness allies that runs a support group through Slack
- Survivor Corp: A support group that aims to connect Long Covid patients to medical care, with discussions primarily on Facebook
- covidCAREgroup: A support group on Facebook and Reddit that provides advice on holistic care for Long Covid patients
Obtaining Long Covid Care
- Survivor Corps listing of Post-Covid Care Centers: A map of Long Covid-friendly treatment centers, primarily in the United States, but also includes international listings
- Mount Sinai’s Center for Post-Covid Care: One of the first medical centers in New York City that is dedicated to the treatment and research of Long Covid
- National Institute of Health’s CARING for Children with Covid: An attempt to understand the manifestation of Covid-19 and Long Covid amongst children
Learn more about Long Covid
- Webinar on “Understanding Long COVID” on Nov 19, 2021 at Harvard T.H. Chan School of Public Health: This conversation brought together patient advocates, physicians, and researchers to discuss the pressing issues facing Long Covid patients
- Patient-Led Research Collaborative: For up-to-date patient-led research projects and reports that have helped characterize the experience of Long Covid
- CDC website on Post-COVID conditions: Provides an overview of possible symptoms and advice on caring for individuals with Long Covid
- NYTimes explainer on how Long Covid affects different parts of the body